Newsroom: kapitaalinjectie voor slimme bril voor blinden en slechtzienden

eHealth en mHealth nieuws uit Nederland en het buitenland: alles over gezondheidsapps, wearables, persoonlijk gezondheidsdossier, fitness en wellness.

Het bericht Newsroom: kapitaalinjectie voor slimme bril voor blinden en slechtzienden verscheen eerst op SmartHealth.

SmartHealth

How to Maximize Your Social Media Experience at #eHealth2017

Challenging time for healthcare innovators in Canada

Colin Hung (@Colin_Hung) is a Toronto-based HealthIT marketing consultant and the founder of #hcldr – one of the largest online healthcare communities on Twitter. He has helped numerous Canadian HealthIT companies expand in Canada and the US.

Last year at e-Health 2016 in Vancouver, Colin was the top Tweeter at the conference. We asked him to share what he is hoping to see at e-Health 2017, why he is so active on social media and what tips he has for those that want to start building their online reputations.

What are you hoping to see at e-Health 2017?

e-Health is the biggest showcase for Canadian healthcare and it is the best place to get an overview of what’s happening from a technology, policy and business perspective. There is no other conference like it in Canada. This year I’m really hoping to find made-in-Canada innovation at e-Health 2017. We have so many smart, passionate people working in our healthcare system who want to improve it. I hope to see innovative thinking/solutions from the presenters and exhibitors at e-Health 2017.

It is a very challenging time for innovation in Canadian healthcare. With healthcare funding under pressure, governments and healthcare organizations are reluctant to invest in innovative solutions. Instead, they revert to the status quo and focus on optimization rather than innovation. I’m hoping to find rebels at e-Health 2017 who are embracing the constraints of Canadian healthcare and coming up with cool solutions to our challenges.

Why are you so active on social media at healthcare conferences?

Using social media at a conference transforms you from a recipient of information to an interactive participant in the event. Social media takes the conference from a run-of-the-mill networking/educational experience and ratchets it up a notch.

Normally at a conference like e-Health, an attendee might meet 25-30 new people (maybe a bit more if you are a masterful networker and attend all the social events). When you use social media you can meet upwards of 50-75 new people at a conference – all because you are sharing the use of the conference hashtag (in this case #eHealth2017).

As well, when you share conference content “live” via social platforms like Facebook Live, Twitter, Instagram and Snapchat, you help extend the reach of the conference beyond the attendees physically in the building. People across the country and around the world can participate remotely through social media. This helps build the profile of the conference, the speaker and for you as the person sharing the useful content.

Is it rude to live-tweet or snap pictures during conference sessions?

<laughing> I get this question a lot. I think 2 years ago, if you were madly typing on your phone or laptop during a session, people would have assumed you were answering email and ignoring the speaker. However, nowadays I think it’s more accepted that people in the audience are using social media during sessions to share information they are learning or doing further research on the topic and sharing it with their social circles. Tweets, snaps, posts and likes are the new applause.

What advice would you give to someone who wants to use social media for the first time at  2017?

My advice is jump in! Pick any social platform – Twitter, LinkedIn, Facebook, SnapChat, Instagram or the e-Health 2017 mobile app and use it to share the useful/fun things you see at e-Health 2017. Don’t worry about constructing the perfect post or tweet, just be yourself and release your thought into the social universe. After a few posts people will start replying to you and pretty soon you’ll have established an online connection.  

You spend a lot of time in the US, what is the funniest misconception you have heard about Canadian Healthcare?

Over the years I’ve heard a lot of misconceptions from our southern neighbours:

  • That the Canadian government has “Death Panels” that decide whether or not to treat terminal patients solely on the basis of cost
  • That Canadians pay a 50% healthcare tax as part of their wages
  • That Canadians are rationed when it comes to healthcare meaning we can only visit the doctor or hospital a certain number of times each year

I think one of the funniest misconceptions I have heard from the US also happens to be one of the saddest:

  • The Canadian healthcare system only allows nurses to practice for 5 years, because after that, their salaries get too high for our system to handle so they leave to be nurses in other countries

This came from a physician who worked at a hospital where they had an extraordinary number of Canadian trained nurses who had left Canada for the greener pastures south of the border.

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e-Health Annual Conference & Tradeshow 2017 | e-Health 2017 Toronto, ON

Patient Engagement With Muscle

When Dave deBronkart (@ePatientDave) wanted access to his own medical record several years ago in the US, he didn’t just fill out a form requesting this information or politely ask the hospital involved, he went public in a big way, loudly demanding “Give me my damn data!”

While his act was not unique it can arguably be seen as initiating a new era of the muscular type of patient engagement currently prevalent in the US. These are patients who are not prepared to sit meekly and wait for an invitation to participate in decisions about their own health care or the health of patients in general.

Engaged patients are demanding their place at the health care decision-making table and have little patience for policy makers or conference organizers who want to keep discussions of patient engagement at theoretical level.

Look at the growth of the #patientsincluded movement in which conferences globally are being told they should include patients at all levels of planning and presenting health care information in a way that accommodates patients.  Anyone who dares hold a conference on patient engagement without having patients on the planning committee and speaker list risks being loudly shamed on social media. Even one element of #ehealth2017 has not been spared such criticism.

Similarly, recent discussions on social media are asking very pointed questions about why patient are often the only ones at the table who are not being paid for their time to provide their input.

This new form of patient engagement is transforming how health care is being planned and delivered in Canada but frankly we still trail the US in truly integrating this approach. Canada has several engaged patient leaders but none with the profile of their American counterparts.

Which bring us to the June 2 pre-conference symposium on Consumer Digital Health at #ehealth2017.

The keynote speaker will be Lygeia Ricciardi (@Lygeia), a US based expert in consumer engagement and digital health. Lygeia established and directed the Office of Consumer eHealth at the Office of the National Coordinator for Health IT (ONC) in the US federal government and is a compelling speaker. The presentation promises to deliver an update on major emerging trends in patient engagement

COACH, Infoway and the Canadian Institute for Health Information (CIHI) will follow Ricciardi’s keynote address with breakout sessions on different aspects of empowering healthcare consumers. This symposium should provide an invaluable snapshot of where Canada will be heading in the next few years.

Health Quality Ontario (for which I work), is currently one of the national leaders in providing the tools and infrastructure to meaningfully involve patients in health care decision-making.

It’s not a straightforward or easy task.

As Health Quality Ontario CEO Dr. Joshua Tepper wrote in @HealthyDebate blog post two years ago, “simply ‘commanding’ or ‘expecting’ health system providers and leaders to engage with patients is unrealistic.

In addition, he noted, “the patients we need to hear from the most are often the hardest to reach. Those who face economic, social, language, cultural, physical and psychological challenges to engagement will need thoughtful and respectful partnership efforts.”

For all of this, he concluded “courage is going to be a pre-requisite.”

Even as more patient involvement in health care planning and delivery is mandated in legislation and becoming embedded in the culture of quality care in Canada, hearing from US experts like Ricciardi is important to help us map where things are heading.

In a digital world, health care delivery models may be determined by jurisdictions but trends such as patient engagement effortlessly cross borders and Canada’s engaged patient community are quick to learn from their peers elsewhere and apply the lessons here.

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e-Health Annual Conference & Tradeshow 2017 | e-Health 2017 Toronto, ON

Effects of Using Child Personas in the Development of a Digital Peer Support Service for Childhood Cancer Survivors

Background: Peer support services have the potential to support children who survive cancer by handling the physical, mental, and social challenges associated with survival and return to everyday life. Involving the children themselves in the design process allows for adapting services to authentic user behaviors and goals. As there are several challenges that put critical requirements on a user-centered design process, we developed a design method based on personas adapted to the particular needs of children that promotes health and handles a sensitive design context. Objective: The purpose of this study was to evaluate the effects of using child personas in the development of a digital peer support service for childhood cancer survivors. Methods: The user group’s needs and behaviors were characterized based on cohort data and literature, focus group interviews with childhood cancer survivors (n=15, 8-12 years), stakeholder interviews with health care professionals and parents (n=13), user interviews, and observations. Data were interpreted and explained together with childhood cancer survivors (n=5) in three explorative design workshops and a validation workshop with children (n=7). Results: We present findings and insights on how to codesign child personas in the context of developing digital peer support services with childhood cancer survivors. The work resulted in three primary personas that model the behaviors, attitudes, and goals of three user archetypes tailored for developing health-promoting services in this particular use context. Additionally, we also report on the effects of using these personas in the design of a digital peer support service called Give Me a Break. Conclusions: By applying our progressive steps of data collection and analysis, we arrive at authentic child-personas that were successfully used to design and develop health-promoting services for children in vulnerable life stages. The child-personas serve as effective collaboration and communication aids for both internal and external purposes.
Journal of Medical Internet Research

Denkt u mee MedMij?

​Samen met het veld ontwikkelt Nictiz voor MedMij producten om veilige informatie-uitwisseling tussen zorgprofessionals en patiënten mogelijk te maken. MedMij vindt het belangrijk dat dit proces transparant is en aansluit op de wensen van het veld die de producten gaan toepassen. Daarom geven wij iedereen de gelegenheid om feedback te geven via ‘Openbare Consultatie’. op 18 mei starten we met twee rapporten in openbare consultatie: Governance en eisen standaarden.

In 2016 is het MedMij-programma gestart met een set van standaarden om gezondheidsinformatie uitwisselbaar te maken tussen systemen van (zorg)professionals en systemen van zorggebruikers/patiënten. In 2017 breidt het MedMij-programma deze set van standaarden verder uit naar andere relevante domeinen. Het MedMij-afsprakenstelsel neemt verwijzingen naar de standaarden op. Standaarden moeten aan een aantal eisen voldoen voordat ze onderdeel kunnen worden van het MedMij-afsprakenstelsel. 

​Dit alles vergt coördinatie. Het rapport Coördinatie standaarden MedMij – Governance beschrijft de besturing (governance) voor het ontwikkelen en indienen van standaarden (rollen, toetsingsproces en beheer). En het rapport Coördinatie standaarden MedMij – Eisen beschrijft de eisen die hierbij gelden. 

Wij nodigen u van harte uit om uw feedback over deze twee rapporten tussen 18 mei en 29 juni 2017 te geven. Op de MedMij-website vindt u de rapporten en de bijbehorende feedbackprocedure.

​​​Meer informatie

Heeft u vragen over de standaarden die onderdeel zijn van het MedMij-stelsel, dan kunt u contact opnemen met Irene van Duijvendijk​.

Nictiz

RVS: hoe kunnen we robots, big data en kunstmatige intelligentie beheersen?

De Raad voor Volksgezondheid en Samenleving (RVS), het onafhankelijke adviesorgaan voor de regering, wil een maatschappelijke discussie op gang brengen over de invloed en impact van technologieën als robots, big data en kunstmatige intelligentie.

Het bericht RVS: hoe kunnen we robots, big data en kunstmatige intelligentie beheersen? verscheen eerst op SmartHealth.

SmartHealth

PEOPLE-Centred (DIGITAL) Health

Who are we in the health system?  Are we patients? Consumers? Citizens, clients, Canadians?  No matter what you call us – we are people.  Unique individuals with unique interests and health care needs; and it is important that we are at the table when decisions about our care are being made. 

This is true no matter “who you are” in the system and no matter what particular care you may require or may not require yet.  As Valerie Billingham said in her session address at the 1998 Salzburg Global Seminar, Through the Patient’s Eyes,  “nothing about me without me.”[1]

We know that Canadians want to be engaged in their care.  They want to be seen and treated as active members of the health care team.  Canada Health Infoway’s (Infoway) annual survey results continue to show that Canadians who have access to digital health tools feel more informed about their care; feel more engaged in their care and feel more confident, not only about the care they are receiving but about their ability to manage their health conditions too.[2]  Providers also recognize the value of giving patients electronic access, noting an increase in patients’ level of engagement and sense of empowerment regarding their own health.[3]

There is an increasing range of digital health solutions in use across the country today, and while we continue to lag behind some of our international counterparts, it is exciting to see that the use of these tools has doubled in the past two years alone.[4] [5] Canadians report that they are able to connect with their health care team through virtual visits, by requesting prescription renewals online, by self-booking appointments, and can access and share their personal health information electronically.

As we continue to explore the future of our health system, we know the potential to improve the patient experience and health outcomes are significant.  The need to do this is paramount and should be guided by the peoples’ voices. WE need to be involved in designing, implementing, and evaluating this change.  OUR voices need to be heard.  As described by the European Patients’ Forum, “empowered patients are part of the healthcare system.   They make informed choices, have better relationships with their healthcare providers, are committed to adhering to treatment, take responsibility for their care and seek preventative measures to better manage their health.”[6]

At this year’s e-Health Conference, Infoway will be bringing ‘regular people’ to the event through paid scholarships and to participate in a panel presentation, “Hearing from Patients on What They Think of Digital Health,” which will take place on Tuesday, June 5 at 10:30 a.m. (Track: Patient Engagement Through Digital Health).

Throughout the conference there is a strong focus on this important topic:

  • Sunday Symposium (Sunday, June 4, 12:00 p.m. – 4:00 p.m.)
  • Advancing Frameworks for Patient Engagement (Monday, June 5, 4:00 p.m. – 5:30 p.m.)
  • Engaging Patients through Digital Health (Wednesday, June 7, 8:30 a.m. – 10:00 a.m.)
  • And more!

Plan to attend some of these promising sessions to learn how your colleagues in the industry are working together to include people in the future of digital health.

I invite you to also take some time to chat with our patient scholars and panelists during your time at the Conference.  Their stories and personal journeys are impactful and their perspectives, enlightening.

I look forward to continuing this discussion with you.  Feel free to connect with me on Twitter @Cassie482. See you at e-Health 2017!

Cassie Frazer has 20 years of health care experience working in numerous roles, including 12 years as a front-line Respiratory Therapist.  She has a Bachelor of Science from Queens University and a Masters in Heath Administration from the University of Toronto.  She was a co-founder of the Pan-Canadian Change Management Network, a leading contributor to the National Change Management Framework and is a certified health informatics professional. Cassie currently works for Canada Health Infoway as the Program Director for Consumer Health & Innovation.  Within the broad portfolio of digital health initiatives she manages, she is able to leverage her experience and interests in change management, health informatics and innovation.


[1]
Valerie Billingham. Through the Patient’s Eyes, Salzburg Seminar Session 356, 1998. Cited in N Engl J Med 366;9 nejm.org, March 1, 2012

[2] Canada Health Infoway. Connecting Patients for Better Health: 2016. Available at: https://www.infoway-inforoute.ca/en/component/edocman/resources/3152-connecting-patients-for-better-health-2016

[3] SRDC. Impacts of direct patient access to laboratory results – Final Report. August, 2015.  Available at:  https://www.infoway-inforoute.ca/en/component/edocman/2775-impacts-of-direct-patient-access-to-laboratory-results-final-report/download

[4] The Commonwealth Fund. Commonwealth Fund International Survey of Primary Care Physicians in 10 Nations. December 7, 2015.  Available at:  http://www.commonwealthfund.org/interactives-and-data/surveys/international-health-policy-surveys/2015/2015-international-survey

[5] Canada Health Infoway. Connecting Patients for Better Health: 2016.

[6] European Patients’ Forum – Patient Empowerment Campaign. May 2015.  Available at: http://www.eu-patient.eu/

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e-Health Annual Conference & Tradeshow 2017 | e-Health 2017 Toronto, ON

Big farma investeert steeds meer in digitale zorg

Marktonderzoeker CB Insights publiceerde onlangs een overzicht van de digitale health investeringen door big farma bedrijven. Het tempo van die investeringen loopt snel op. De wereldwijde venture capital tak van Merck deed bijvoorbeeld al vierentwintig investeringen in digital health startups (of ondernemingen die al langer bezig zijn).

Het bericht Big farma investeert steeds meer in digitale zorg verscheen eerst op SmartHealth.

SmartHealth

What Matters in Weight Loss? An In-Depth Analysis of Self-Monitoring

Background: Using technology to self-monitor body weight, dietary intake, and physical activity is a common practice used by consumers and health companies to increase awareness of current and desired behaviors in weight loss. Understanding how to best use the information gathered by these relatively new methods needs to be further explored. Objective: The purpose of this study was to analyze the contribution of self-monitoring to weight loss in participants in a 6-month commercial weight-loss intervention administered by Retrofit and to specifically identify the significant contributors to weight loss that are associated with behavior and outcomes. Methods: A retrospective analysis was performed using 2113 participants enrolled from 2011 to 2015 in a Retrofit weight-loss program. Participants were males and females aged 18 years or older with a starting body mass index of ≥25 kg/m2, who also provided a weight measurement at the sixth month of the program. Multiple regression analysis was performed using all measures of self-monitoring behaviors involving weight measurements, dietary intake, and physical activity to predict weight loss at 6 months. Each significant predictor was analyzed in depth to reveal the impact on outcome. Results: Participants in the Retrofit Program lost a mean –5.58% (SE 0.12) of their baseline weight with 51.87% (1096/2113) of participants losing at least 5% of their baseline weight. Multiple regression model (R2=.197, P<0.001) identified the following measures as significant predictors of weight loss at 6 months: number of weigh-ins per week (P<.001), number of steps per day (P=.02), highly active minutes per week (P<.001), number of food log days per week (P<.001), and the percentage of weeks with five or more food logs (P<.001). Weighing in at least three times per week, having a minimum of 60 highly active minutes per week, food logging at least three days per week, and having 64% (16.6/26) or more weeks with at least five food logs were associated with clinically significant weight loss for both male and female participants. Conclusions: The self-monitoring behaviors of self-weigh-in, daily steps, high-intensity activity, and persistent food logging were significant predictors of weight loss during a 6-month intervention. Journal of Medical Internet Research

Moving Towards an eHealth Ecosystem

Earlier this year, major EMR vendor EPIC opened its first App Orchard, where third-party developers can build healthcare apps that can connect directly with the enterprise system using HL7 FHIR. A year before that, Cerner launched code, allowing developers to build on top of their open platform.

These events may seem insignificant to the less technical among us, but they represent a growing appreciation for greater connections across healthcare systems. Discussion about data exchange and interoperability have exploded across the industry this year, which a whole section dedicated to it at HIMSS17.

The potential here is incredible. With major vendors adopting an open attitude towards third-party developers, and modern data standards like FHIR rising in popularity, we are witnessing the growth of a healthcare ecosystem that can connect to tools designed to solve specific healthcare problems. Rather than rely on one vendor to be the jack of all trades, we can leverage the utility and expertise of third-party apps to address all aspects of patient care.

To get ready for eHealth Conference, I would like to share a couple key concepts and terms to keep in mind.

Interoperability

Modern interoperability is moving away from simply reading and storing data between two systems, and evolving into an environment where healthcare data is exchanged, stored, and used across multiple systems. According to HIMSS, interoperability is “the ability of health information systems to work together within and across organizational boundaries in order to advance the effective delivery of healthcare for individuals and communities.”

HL7 FHIR (a.k.a FHIR)

Developed by HL7, FHIR is their newest data standard that leverages web standards, with a focus on implementation. The standard framework is designed with modern technologies in mind. In a nutshell, FHIR is the language that the data must conform to. EPIC and Cerner have opened their platform for apps built on FHIR. The standard is currently in trial for use in Ontario.

(source)

What are your thoughts on interoperability? What kinds of apps do you want to see in your healthcare ecosystem? Share your comments with us on Twitter (@eHealthConf) with the hashtag #eHealth2017.

To learn more about interoperability at eHealth Conference, check out session EP02 – From mHealth to Interoperability and Beyond! on Monday.

For more reading on the topic, visit these articles:

App store for EHRs may be reality in not so distant future

Will the Epic Systems “App Orchard” Grow EHR Interoperability?

Ontario EHR Interoperability Standards

Crystal Chin works with MedStack, a health tech startup in Toronto. MedStack is a cloud-based hosting platform that simplifies building privacy compliance and interoperability in healthcare apps. Connect with her on Twitter (@_CrystalChin).

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e-Health Annual Conference & Tradeshow 2017 | e-Health 2017 Toronto, ON